πŸŽ—CCAM. Last day of september

Today is the last day of September which means it is the end of Childhood Cancer Awareness Month too…

Well it’s the end for you. But it will never be the end for me and many more oncology parents out there.

πŸŽ— We raise awareness everyday! πŸŽ—

Next time you see a post on facebook, twitter, instagram please just take 2 minutes to read.

Please make sure you know the sign and the symptoms of Childhood Cancer.

Always kiss your child goodnight.

Riley, I love you. You are so strong, so brave and a fighter. You make me so proud.

Hope, dream, believe. πŸŽ—

πŸŽ— CCAM. 3 Years in remission.

I can’t say I can’t believe Riley has reached 3 years in remission but I can believe it!

He was so brave for 16 months during his cancer treatment and did most of it with a smile on his face. You absolutely deserve it Riley you honestly do.

I know we are one of the lucky ones. I’m so so so proud of him and everything he has achieved since finishing treatment.

Here is too the next two years Riley let’s reach 5 years in remission and kick cancer but altogether!

I love you so much ❀️

πŸŽ—CCAM. Stem Cell Transplant.

Riley had a Stem Cell TransplantπŸŽ—
This was the most difficult part of his treatment plan. Really difficult.
We spent a long 9 weeks in hospital.

Riley had his own Stem Cells Transplanted after 2 weeks of High Dosed Chemotherapy.

You can see from these pictures Riley was in pain and uncomfortable. He did get extremely poorly and was rushed to intensive care twice with septic shock and a number of other infections. He was needing a low percent of oxygen. He had really bad mucositis where he couldn’t eat or drink at all and was having to have water by a sponge onto his lips.

With spending nine weeks in hospital laying in a hospital bed he actually found it difficult to get up and walk again, But little by little he managed to get his muscles working again.

These 9 weeks were the hardest to deal with physically and emotionally. Been in the same room for 9 weeks. We were literally in isolation. It was really hard.

πŸŽ—πŸŽ—

πŸŽ—CCAM. Family is everything…

As a family of children with cancer, you have to remain strong throughout some of the hardest moments. Seeing, dealing trying to cope with things, no family should ever have to.

A child’s cancer diagnosis has a long lasting effect and these effects are likely to last a lifetime and will effect all the family.

πŸŽ— CCAM. Side effects.

Riley had a lot of side effects during his treatment. He still had some now.

During treatment he had:
πŸŽ—hair loss.
πŸŽ— nausea and vomiting.
πŸŽ— neutropenia.
πŸŽ— skin changes.
πŸŽ— diarrhoea.
πŸŽ— constipation.
πŸŽ— mouth ulcers.
πŸŽ— taste changes.
πŸŽ— pain.
πŸŽ— weight loss.
πŸŽ— infections.

Riley now and still suffers with:
πŸŽ— bowel problems – diarrhoea.
πŸŽ— taste changes – only eats certain foods as his taste buds haven’t fully recovered from treatment.
πŸŽ— hearing loss – really sensitive hearing to loud noises. can’t hear some loud noises at all.
πŸŽ— dental problems – had teeth removed, adult teeth now growing causing him pain.
πŸŽ— can’t control his emotions.
πŸŽ— pain – walking long distances, when tired hurts more.

Some people think once the treatment stopped and your in remission everything stops. It’s wrong. You still have the after effects to deal with. The side effects to deal with. The trauma to deal with. Sometimes it’s after everything has finished that you need people most to understand.

❀️❀️