Neuroblastoma most commonly occurs in 1 of the adrenal glands situated above the kidneys, or in the nerve tissue that runs alongside the spinal cord in the neck, chest, tummy or pelvis.
It can spread to other organs, such as the bone marrow, bone, lymph nodes, liver and skin.
It affects around 100 children each year in the UK and is most common in children under the age of 5. 👦🏼👦🏼👦🏼👦🏼👦🏼
The cause is unknown.
Symptoms of neuroblastoma:
🎗a swollen, painful tummy.
🎗 blueish lumps in the skin.
🎗bruising, particularly around the eyes.
🎗weakness in the legs, an unsteady walk.
🎗constipation and difficulty peeing.
🎗loss of energy.
🎗loss of appetite and weight loss.
🎗eye and muscle movements.
On the day Riley was diagnosed he had a biopsy taken of the tumour which was under his eye this was to see what type of cancer Riley had, but the oncologist already knew Riley had Neuroblastoma.
An eye specialist came over from St James to the LGI just to do that biopsy, he removed all the tumour as it was 2.5cm.
Biopsy confirmed which we knew, Riley had Neuroblastoma stage 4 high risk.
Riley then had a 4-5 hour operation in March 2015. The tumour in his abdomen was successfully removed aswell as one of his adrenal glands. I have said Rileys life was saved that day. Will always be so thankful to the surgeon!
Riley had a Hickman line. This was the one thing that scared me when Riley was diagnosed. I was scared to even pick him up because I was worried I was gonna pull it out! It wasn’t something I was used to seeing this white line coming out my sons skin on his chest!
We’ve had some funny moments with Riley and he’s hickmen lines too… a story that my mum will never find funny, she was looking after Riley at hospital one evening so I could go home and have a bath, well not long after getting home she rung me, Riley had fallen out of bed and his Hickman line had snapped and broke. When I got back to the hospital Riley was laughing, he was running around saying he was a “cheeky monkey” I couldn’t believe it! 😂😂 another line was put in. Mr tumble now has Rileys Hickman line.
Another time, maybe not so funny… the nurse came to check Rileys Hickman line before having a some treatment, started giving his line a flush it just popped! Again another line was put back in.
Riley now has a beautiful little scar on his chest where his line used to be. It’s beautiful because that line helped Riley get all of his treatments, the treatments that got him where he is today! A roblox obsessed cheeky little man!