Riley was only 21 months when he was diagnosed with Stage4 High Risk Neuroblastoma. A highly aggressive form of childhood cancer. Riley’s treatment lasted for 16 months and were proud to say he has now been in remission for 21 months.
Before Riley was diagnosed I took him to our GP a number of times over his eyes. I was told it was a eye infection, second time it was a cyst. Riley started to loose alot of weight, he wasn’t eating, he was sleeping & crying alot. I decided to take Riley to be weighed with the Health Visitor to make sure everything was okay. That morning Riley’s nose was bleeding. I was told it was best to take him to A&E so i did. In A&E was saw an eye specialist who took a look at Riley’s eye and once again i was told it was a cyst. We needed to stay in hospital for Riley to have some medicine through an Iv as he wasn’t eating. After 3 days we was discharged and sent home with an appointment to see another children’s eye specialist.
We must have been in the room with the eye specialist 2 minutes before he said Riley needed to go for an urgent MRI as Riley’s eye was popping out of his socket. So we headed back to the hospital & waited for the MRI.
The day after Riley had his MRI i told the results no parent would ever wish to receive.
My gorgeous blonde hair, blue eyed boy had cancer. Treatment begun straight away. What people was telling me was a cyst, was infact a tumour. Riley went to surgery and the tumour under his eyelid was removed it was 4cms long. He also had a hick men line fitted. Riley then started his first chemotherapy cycle a week after. The following 16 months was filled with aggressive treatments with aggressive effects. He was sent to ICU twice during this time.
Riley has nearly been in remission for 2 years in march 2018.