πŸŽ— CCAM. Side effects.

Riley had a lot of side effects during his treatment. He still had some now.

During treatment he had:
πŸŽ—hair loss.
πŸŽ— nausea and vomiting.
πŸŽ— neutropenia.
πŸŽ— skin changes.
πŸŽ— diarrhoea.
πŸŽ— constipation.
πŸŽ— mouth ulcers.
πŸŽ— taste changes.
πŸŽ— pain.
πŸŽ— weight loss.
πŸŽ— infections.

Riley now and still suffers with:
πŸŽ— bowel problems – diarrhoea.
πŸŽ— taste changes – only eats certain foods as his taste buds haven’t fully recovered from treatment.
πŸŽ— hearing loss – really sensitive hearing to loud noises. can’t hear some loud noises at all.
πŸŽ— dental problems – had teeth removed, adult teeth now growing causing him pain.
πŸŽ— can’t control his emotions.
πŸŽ— pain – walking long distances, when tired hurts more.

Some people think once the treatment stopped and your in remission everything stops. It’s wrong. You still have the after effects to deal with. The side effects to deal with. The trauma to deal with. Sometimes it’s after everything has finished that you need people most to understand.

❀️❀️

πŸŽ—CCAM. Will you help raise awareness.

Today in the UK 12 children were diagnosed with cancer. Would you believe that?

Every day worldwide, 820 children are diagnosed with cancer. How is that possible?

Will you help raise awareness?

πŸŽ—A note for my sons teacher. CCAM #ablogaday #day5

First day back to School for Riley after the summer holidays.
I know how lucky i am that Riley is starting year one today. Childhood Cancer is meant to be rare and for whatever reason Riley is one in the 500 children to be diagnosed. Rileys survial rate was 40% and the treatment Riley reciveced was so aggresive.

Riley is a lucky one. I know a number of parents who will not be able to post their first school picture or back to school picture this year. I know families who would give anything to put their childs name on a uniform, pack a lunch box and give their child a kiss as they walk into the classroom door. To those families, my heart is always with you.
Today my eyes will full with tears again as i am so proud to walk Riley into his new classroom door. A new school year, a new chapter. Riley class dont know what Riley has been through when he was younger, the school do and his teachers but most of his friends dont. I have to remember they are only 5-6 years old. They wont understand. Dont get me wrong ive told some of his friends mums but it took me a while because i ddint want them to stop their child from playing with Riley and i know i shouldnt have felt like that. Its the normal life that scares me for Riley. The thought of him not been able to do what other children might be able too because of the treatment Riley had. Riley is starting year one 2 years into remission and on no treatment!

To my sons new teacher, you have my son in your class, he survived cancer. He has had to fight more them you could imagine.

In just 5 years old his life my son has experienced:
⦁ Pain from surgery and many procedures.
⦁ Many hickmen lines inserted into his chest.
⦁ 100 of hospital appointments.
⦁ Extreme tiredness and sickness because of the chemotherapy.
⦁ Session after session of chemotherapy that has killed adults.
⦁ Reduced mobility.
⦁ Many sleepovers at the hospital because of infection.
⦁ Controlled diet.
⦁ Only having adult company.
⦁ Regular temperature checks and medication at home.
⦁ Not been able to do what a child my age would have been able to do.
⦁ Been stared at because i didnt have any hair.

Riley has seen me cry, seen our family cry and seen our frustration when people dont understand Riley… At one point when Riley was so sick i have been so scared to look to the future. My life is different to what i wanted it to be. I am over protective! I want you to know about my sons illness because he had suffered so much already.
Despite all this, Riley wants to enjoy the normal life. He enjoys life now, laughing and smiling, running around, playing games and building new things. He wants to do everthing another child his age wants to do. I want to wrap Riley up in cotton wool and keep him at home with me but i cant.

So to the teachers, staff and kids at school heres to an amazing 2018/19. And to my own superhero Riley, good luck babe, i love you!

πŸŽ—A Film About Riley! CCAM #ablogaday #day3

As September is Childhood Cancer Awareness month, Alice, Rileys Auntie decided to share her graduate archive film following Riley, her nephew on his cancer journey.
Riley was just 21 months old when we got the devastating news that he was going to have to face the biggest battle of his life. He was always the happiest little chappy playing at home and suddenly his world was turned upside down and the hospital ward became his new home.
He never once let this stop him though and he continued to battle on. Treatment after treatment and the way he was improving was like he was becoming his own little superhero, his spirit and determination to fight cancer was an inspiration to everyone that met him.
Eventhough he had troll accounts on twitter use his image and say “Cancer is funny because people like Riley Hoult die” the amount of support he gained from celebrities, strangers and friends and family alike was unbelieveable.
Don’t get me wrong there were also days when it was difficult to see Riley however seeing his smile and hearing his laugh was enough to pull everyone through it.
He was so unaware of the battle he was fighting and with the treatment of the hospital and the support of all the NHS staff he pulled through and beat cancer.
He’s over 2 years in remission for Neuroblastoma cancer now and Alice considers herself to be very lucky that she get to see her best friend everyday, to hear him laugh and make him smile. But, sadly, there are still children being diagnosed every day with some form of childhood cancer, but I hope that Riley’s journey and this film might bring a little bit of inspiration or hope to a family that needs it most.
Nobody should ever have to hear the news that a loved one has cancer, but together we can beat cancer!

Please click the link before to see Rileys Film.

Rileys Film

Happy 50th Mum🌸

Yesterday my wonderful mum turned 50!

Me and Riley treated her to a lovely afternoon tea at Just grande in Leeds Just Grand Leeds it’s kind of a retro/vintage style. Home made cakes and scones. Was wonderful and my mum really enjoyed herself! So did Riley and Riley’s the hard one to please in somewhere new. We had a selection of sandwiches, a cake each and a lovely scone each aswell. My mum had a glass or roses Prosecco which is my favourite but obviously with me driving I couldn’t have one!

The staff were lovely. It was so busy. They have only had a small number of tables free. People were walking in and been told they only had 45 minutes because all the free tables were reserved for a certain time and I’m not surprised with how nice it was!!!!! Will definitely be taking my mum there again.

My dad also made his first birthday cake for my mum. Bless him. I think it’s funny actually because my mums a wonderful cake baker and maker. I think he did quite well though and my mum was very happy and surprised which is always good!

My dad also took my mum out yesterday evening for a birthday meal at Tharavadures Restaurant where she’s been wanting to go for a while now. Which was another surprised he had arranged.

And, Of course Alice came home for my mums birthday too back from uni. She’s always cold so…. always somebody who’s cold. Haha.

I love my mum. My 50 year old mum. Yeah we argue and sometimes we don’t agree on thinks but she has one of the best hearts around. She will always have a big place in my heart, she’s my bestest friend and I love her. She’s been the most amazing grandma to Riley always there throughout everything from the minute he was born. Throughout his cancer treatment and his number one fan right now! Happy 50th birthday mum! We love you!

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