Cancer Life

Scan Results 🎗

We have the most wonderful news to share with you all!

Riley’s recent scan results were all

C L E A R!!! 💛💛

This year we are trying so hard to put cancer behind us but when it comes to his 6monthly scans it is hard to not think back to when he was diagnosed and he was having all these different tests and scans done.

It’s always the best sound to hear when his consultant tells me his scans are all clear!! The anxiety stops for another 6 months.

Riley is 5 years old now, he was only 21months when he was diagnosed. He is asking more questions about when he was having treatment for his cancer. So far he’s asked… “has my cancer gone yet” “why didn’t I have any hair” I just try and explain things to him the best that I can with him only been 5 it’s still hard for him to be able to understand things probably. He knows why he didn’t have any hair. His knows why he had a wiggly line and a tube in his nose. He understands more now when he has to go for his MRI scans. We have pictures all over the house of Riley with no hair so it’s understandable he’s going to ask questions. He knows he is a special little boy who has the best superpowers! We got a book from his consultant about Lucy having a tumour so hopefully the more we can read of that he will be able to understand a little bit more…

Riley has now been in remission for 2years! 730days! He’s had 4 clear scans in a row now! Which is bloody amazing!!!

So so so proud of my amazing strong little boy. I will always be every so grateful to the oncology team at the hospital for helping save my little boys life! We had some absolutely horrible times when Riley had his treatment but now it’s all about having fun, counting our blessings and making the most wonderful memories!

I love you Riley.

Cancer Life

2Years in remission!! 🎗

Today is a very special day for my boy…

2 years he’s now been in remission. no evidence of disease… cancer free!!!!

my boy is smashing it everyday!

Could not be any more proud of him.

We still have to battle with the side effects most days but Riley does everything was a smile on his face. Everyday is a day worth celebrating for Riley. He had the hardest battle of his life to face at just 21months the old when he was diagnosed but he’s now 5 years old and doing absolutely amazing! 💕

#cancerversary

Cancer Life

How I Wish People Saw Riley’s Bald Head.

One thing that used to upset me the most when Riley was going through his treatment was the way people used to look and stare at him when he was bald.

Tell you, it used to make my blood boil. It’s not even like they used to take a look and look again it was a full on stare. All eyes on him. I could always feel myself boiling inside getting ready for the next person to stare at him for me to let go all my anger.

Of course, people think it’s sad that a child has cancer. It’s not sad, that child is fighting cancer. To them it’s the hardest battle they have to face. The day you walk past a child with no hair is another day that, that child is winning!

I finally decided to shave Riley’s hair off in December because his hair was starting to fall out, just two chemotherapy sessions into his treatment plan. I woke up one morning at the hospital and found little blonde hairs on his pillow. That’s when straight away I hoped the chemotherapy was working.

Thankfully Riley didn’t loose his eyelashes, he has the most beautiful long lashes…

After 7 sessions of chemotherapy and whilst waiting for surgery Riley’s hair started to grow back. It was very very very blonde. Was only like this until it fell out again during high dose chemotherapy. His surgery was in March and his high dose chemotherapy started in April. One month apart.

After 21months of treatment Riley now has light brown hair.

For a 4 year old Riley has never asked questions when we have seen other bald children in clinic or on the ward. When I ask Riley why didn’t he have any hair he just says because he was poorly but he’s all better now.

Riley knows he was poorly and he knows he had cancer but he doesn’t know what kind of cancer or all the treatment he’s had. He will know more about then when he’s old enough to understand…

I wish having hair didn’t mean healthy and been bald didn’t mean sick. I wish bald was a sign of an strong fighter winning a battle. I guess all I can hope is when children ask their parents questions, the parents respond with uplifting comments of hope..

I know people are going to talk and stare but please don’t. Smile! That child has a battle they shouldn’t have to face. Smile and know they are brave! They look beautiful without hair.

I used to always put a hat on Riley whenever we went out but he always took it off. Which I don’t blame him to be honest he was proud of his bald head! He showed it off! I will always be so proud of him.

When Riley was diagnosed with cancer Alice (his auntie) more ales decided straight away that she wanted to have her head shaved and donate her hair to Little Princess trust LittlePrincessTrust

Which she raised over £2000 for for candleligjters the charity that supported us and Riley throughout his treatments Candlelighters

Want to follow our journey even more? Follow us on Facebook. www.facebook.com/rileysjourneyxo

Cancer Life

🎗 World Cancer Day 🎗

638days, 21months. This is how long Riley thought Cancer for…

Today is world cancer day. I was told the 4 words no parent ever wants to hear. Every parents worst nightmare.

28|02|2014 was the hardest day of our life. The day I was told Riley had cancer, the day Neuroblastoma walked into our lives and every parents worst nightmare had begun…

  • 7 chemotherapy sessions.
  • 5 hour surgery to remission be the tumour in his adrenal gland.
  • Stem cell harvest.
  • High dose chemotherapy.
  • Stem cell transplant.
  • Radiotherapy.
  • Immunotherapy.
  • Antibody treatment.

Every part of Riley’s treatment was difficult for him but he did it with a smile on his face.

In March 2016 we was told amazing news, Riley’s was in remission. No sign of cancer anywhere. Riley had well and truly beaten cancer.

Riley 1 – Neuroblastoma 0!

Today I am thanking those people who saved my sons life. Im remembering all those we lost along the way, those still fighting and those who survive. No matter how well Riley looks today, I’ll never forget him laid on his hospital bed with no energy…

#WorldCancerDay 🎗💖

Daily Life

So, how was my January?

How was my January? Ha.

Well the new year was fun. Or should I say the 1st of January…

On the second of January Me and Riley extended our family by four feet and welcomed a lovely shih tzu puppy into our family, Coco. But On the same day I ended up bumping my new car that I’d only had over 2 weeks on our gate. Great start to the year! Urgh! Baring in mind my insurance wanted £300…

dint on car...

Alice turned 21! So no longer a teenager, My little sister is definitely growing up! Still miserable. ⬇️

Coco had all her puppy injections so she’s been able to go for her first walk which Riley was soo excited about! She’s a wonderful little walker who likes to be fussed over which is funny. She will sit down and refuse to move. She even had a little visit to PetsAtHome at the end of the month..⬇️

Tbqh I’m actually sat here trying to think of everything that I’ve done in January and it’s not a lot. Like to be January is the month everybody struggles with money and wanting to loose the weight they’ve put on over Christmas. I’ve spent most of January trying to eat all the chocolate I got for Christmas!

I had my hair re-dyed. You know everytime I go to the hairdressers I come out feeling like a brand new women. New hair new attitude!⬇️


And we managed to see the ENT (ears nose and throat) this week & I signed a consent form & Riley’s now on a waiting list to finally have grommets put into his ears to stop all these nasty ear infections he keeps getting. I know it might be strange for you to read but I honestly can’t wait. He gets so much pain from his ears, he gets infection after infection every few weeks now. He doesn’t sleep he’s in that much pain so the grommets will definitely help him and stop the infections!

Oh and I’ve managed to get my car booked in to be fixed!

Here to a wonderful February! 🤞🏻