🎗 CCAM. 3 Years in remission.

I can’t say I can’t believe Riley has reached 3 years in remission but I can believe it!

He was so brave for 16 months during his cancer treatment and did most of it with a smile on his face. You absolutely deserve it Riley you honestly do.

I know we are one of the lucky ones. I’m so so so proud of him and everything he has achieved since finishing treatment.

Here is too the next two years Riley let’s reach 5 years in remission and kick cancer but altogether!

I love you so much ❤️

🎗CCAM. Stem Cell Transplant.

Riley had a Stem Cell Transplant🎗
This was the most difficult part of his treatment plan. Really difficult.
We spent a long 9 weeks in hospital.

Riley had his own Stem Cells Transplanted after 2 weeks of High Dosed Chemotherapy.

You can see from these pictures Riley was in pain and uncomfortable. He did get extremely poorly and was rushed to intensive care twice with septic shock and a number of other infections. He was needing a low percent of oxygen. He had really bad mucositis where he couldn’t eat or drink at all and was having to have water by a sponge onto his lips.

With spending nine weeks in hospital laying in a hospital bed he actually found it difficult to get up and walk again, But little by little he managed to get his muscles working again.

These 9 weeks were the hardest to deal with physically and emotionally. Been in the same room for 9 weeks. We were literally in isolation. It was really hard.


🎗 CCAM. Side effects.

Riley had a lot of side effects during his treatment. He still had some now.

During treatment he had:
🎗hair loss.
🎗 nausea and vomiting.
🎗 neutropenia.
🎗 skin changes.
🎗 diarrhoea.
🎗 constipation.
🎗 mouth ulcers.
🎗 taste changes.
🎗 pain.
🎗 weight loss.
🎗 infections.

Riley now and still suffers with:
🎗 bowel problems – diarrhoea.
🎗 taste changes – only eats certain foods as his taste buds haven’t fully recovered from treatment.
🎗 hearing loss – really sensitive hearing to loud noises. can’t hear some loud noises at all.
🎗 dental problems – had teeth removed, adult teeth now growing causing him pain.
🎗 can’t control his emotions.
🎗 pain – walking long distances, when tired hurts more.

Some people think once the treatment stopped and your in remission everything stops. It’s wrong. You still have the after effects to deal with. The side effects to deal with. The trauma to deal with. Sometimes it’s after everything has finished that you need people most to understand.


🎗CCAM. Neuroblastoma…

Neuroblastoma most commonly occurs in 1 of the adrenal glands situated above the kidneys, or in the nerve tissue that runs alongside the spinal cord in the neck, chest, tummy or pelvis.

It can spread to other organs, such as the bone marrow, bone, lymph nodes, liver and skin.

It affects around 100 children each year in the UK and is most common in children under the age of 5. 👦🏼👦🏼👦🏼👦🏼👦🏼

The cause is unknown.

Symptoms of neuroblastoma:

🎗a swollen, painful tummy.
🎗 blueish lumps in the skin.
🎗bruising, particularly around the eyes.
🎗weakness in the legs, an unsteady walk.
🎗constipation and difficulty peeing.
🎗loss of energy.
🎗pale skin.
🎗loss of appetite and weight loss.
🎗bone pain.
🎗eye and muscle movements.

🎗CCAM. I didn’t think, cancer.

Even when Riley wasn’t eating and sleeping a lot, I didn’t think cancer.

When I was taking Riley to the doctors for 3 weeks in a row, i didn’t think cancer.

When me and my mum took him to the emergency doctors, we didn’t think cancer.

When Rileys eye was swollen, we didn’t think cancer.

When we was sitting in the A&E with Riley waiting to see the doctor, we didn’t think cancer.

When Riley spent 3 days in the hospital on antibiotics and fluids, i didn’t think cancer.

When Riley had a eye test and got sent to the hospital for a CT scan, i didn’t think cancer.

When I was sitting in a room with Riley on my knee been told that they had found a lump on the CT scan, I didn’t think cancer.

When Riley had test after test after test, I didn’t think cancer.

Until it was…

When we were sat in a room meeting the oncologist team and nurses, I didn’t want it to be cancer.

When Riley was having an anaesthetic for the first time, I didn’t want it to be cancer.

When Riley was having a Hickman line placed into his chest, I didn’t want it to be cancer.

When we were admitted onto the children’s oncology ward, I didn’t want it to be cancer.

When you notice all the bald children on the ward and wonder why your child is there, I didn’t want it to be cancer.

September is Childhood Cancer Awareness Month. Please educate yourself on the signs and symptoms of Childhood Cancer!

#gogold #ccam #glowgold 🎗