๐ŸŽ—CCAM. Last day of september

Today is the last day of September which means it is the end of Childhood Cancer Awareness Month tooโ€ฆ

Well it’s the end for you. But it will never be the end for me and many more oncology parents out there.

๐ŸŽ— We raise awareness everyday! ๐ŸŽ—

Next time you see a post on facebook, twitter, instagram please just take 2 minutes to read.

Please make sure you know the sign and the symptoms of Childhood Cancer.

Always kiss your child goodnight.

Riley, I love you. You are so strong, so brave and a fighter. You make me so proud.

Hope, dream, believe. ๐ŸŽ—

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๐ŸŽ— CCAM. 3 Years in remission.

I canโ€™t say I canโ€™t believe Riley has reached 3 years in remission but I can believe it!

He was so brave for 16 months during his cancer treatment and did most of it with a smile on his face. You absolutely deserve it Riley you honestly do.

I know we are one of the lucky ones. Iโ€™m so so so proud of him and everything he has achieved since finishing treatment.

Here is too the next two years Riley letโ€™s reach 5 years in remission and kick cancer but altogether!

I love you so much โค๏ธ

๐ŸŽ—CCAM. Stem Cell Transplant.

Riley had a Stem Cell Transplant๐ŸŽ—
This was the most difficult part of his treatment plan. Really difficult.
We spent a long 9 weeks in hospital.

Riley had his own Stem Cells Transplanted after 2 weeks of High Dosed Chemotherapy.

You can see from these pictures Riley was in pain and uncomfortable. He did get extremely poorly and was rushed to intensive care twice with septic shock and a number of other infections. He was needing a low percent of oxygen. He had really bad mucositis where he couldnโ€™t eat or drink at all and was having to have water by a sponge onto his lips.

With spending nine weeks in hospital laying in a hospital bed he actually found it difficult to get up and walk again, But little by little he managed to get his muscles working again.

These 9 weeks were the hardest to deal with physically and emotionally. Been in the same room for 9 weeks. We were literally in isolation. It was really hard.

๐ŸŽ—๐ŸŽ—

๐ŸŽ— CCAM. Side effects.

Riley had a lot of side effects during his treatment. He still had some now.

During treatment he had:
๐ŸŽ—hair loss.
๐ŸŽ— nausea and vomiting.
๐ŸŽ— neutropenia.
๐ŸŽ— skin changes.
๐ŸŽ— diarrhoea.
๐ŸŽ— constipation.
๐ŸŽ— mouth ulcers.
๐ŸŽ— taste changes.
๐ŸŽ— pain.
๐ŸŽ— weight loss.
๐ŸŽ— infections.

Riley now and still suffers with:
๐ŸŽ— bowel problems – diarrhoea.
๐ŸŽ— taste changes – only eats certain foods as his taste buds havenโ€™t fully recovered from treatment.
๐ŸŽ— hearing loss – really sensitive hearing to loud noises. canโ€™t hear some loud noises at all.
๐ŸŽ— dental problems – had teeth removed, adult teeth now growing causing him pain.
๐ŸŽ— canโ€™t control his emotions.
๐ŸŽ— pain – walking long distances, when tired hurts more.

Some people think once the treatment stopped and your in remission everything stops. Itโ€™s wrong. You still have the after effects to deal with. The side effects to deal with. The trauma to deal with. Sometimes itโ€™s after everything has finished that you need people most to understand.

โค๏ธโค๏ธ

Cancerversary๐ŸŽ—

๐ŸŽ—FOUR years ago today my heart was broken, i was told my baby had cancer… stage 4 high risk neuroblastoma.

as a family this was the worst day of our lives. we had all these people trying to tell us information about what was going to happen next & all i could think about was what riley was like only a few weeks before like a โ€˜normalโ€™ child but the child that was sat on my knee now had cancer & he was so poorly.

riley had 15 months worth of treatment – 7 chemotherapy sessions, 4hours in surgery having his main tumour removed, high dose chemotherapy, stem cell transplant where he spent 9 long weeks in the same room after catching so many infections and also spending time in intensive care, 15 radiotherapy sessions, immunotherapy & antibodies treatment riley was put into remission & has been for over 2 years now.

we have met some of the most amazing people throughout this journey, riley has been cared for by the most amazing Oncology Team – his consultants, doctors, nurses and surgeons who will always have a massive place in my heart!๐ŸŽ—

it is the most amazing thing to see riley going to school now, making friends, laughing & smiling. he amazes me every single day and I couldnโ€™t be any more proud of him!

Riley is and always will be our very own super hero๐ŸŽ—