Cancer Life

Scan Results 🎗

We have the most wonderful news to share with you all!

Riley’s recent scan results were all

C L E A R!!! 💛💛

This year we are trying so hard to put cancer behind us but when it comes to his 6monthly scans it is hard to not think back to when he was diagnosed and he was having all these different tests and scans done.

It’s always the best sound to hear when his consultant tells me his scans are all clear!! The anxiety stops for another 6 months.

Riley is 5 years old now, he was only 21months when he was diagnosed. He is asking more questions about when he was having treatment for his cancer. So far he’s asked… “has my cancer gone yet” “why didn’t I have any hair” I just try and explain things to him the best that I can with him only been 5 it’s still hard for him to be able to understand things probably. He knows why he didn’t have any hair. His knows why he had a wiggly line and a tube in his nose. He understands more now when he has to go for his MRI scans. We have pictures all over the house of Riley with no hair so it’s understandable he’s going to ask questions. He knows he is a special little boy who has the best superpowers! We got a book from his consultant about Lucy having a tumour so hopefully the more we can read of that he will be able to understand a little bit more…

Riley has now been in remission for 2years! 730days! He’s had 4 clear scans in a row now! Which is bloody amazing!!!

So so so proud of my amazing strong little boy. I will always be every so grateful to the oncology team at the hospital for helping save my little boys life! We had some absolutely horrible times when Riley had his treatment but now it’s all about having fun, counting our blessings and making the most wonderful memories!

I love you Riley.

Cancer Life

How I Wish People Saw Riley’s Bald Head.

One thing that used to upset me the most when Riley was going through his treatment was the way people used to look and stare at him when he was bald.

Tell you, it used to make my blood boil. It’s not even like they used to take a look and look again it was a full on stare. All eyes on him. I could always feel myself boiling inside getting ready for the next person to stare at him for me to let go all my anger.

Of course, people think it’s sad that a child has cancer. It’s not sad, that child is fighting cancer. To them it’s the hardest battle they have to face. The day you walk past a child with no hair is another day that, that child is winning!

I finally decided to shave Riley’s hair off in December because his hair was starting to fall out, just two chemotherapy sessions into his treatment plan. I woke up one morning at the hospital and found little blonde hairs on his pillow. That’s when straight away I hoped the chemotherapy was working.

Thankfully Riley didn’t loose his eyelashes, he has the most beautiful long lashes…

After 7 sessions of chemotherapy and whilst waiting for surgery Riley’s hair started to grow back. It was very very very blonde. Was only like this until it fell out again during high dose chemotherapy. His surgery was in March and his high dose chemotherapy started in April. One month apart.

After 21months of treatment Riley now has light brown hair.

For a 4 year old Riley has never asked questions when we have seen other bald children in clinic or on the ward. When I ask Riley why didn’t he have any hair he just says because he was poorly but he’s all better now.

Riley knows he was poorly and he knows he had cancer but he doesn’t know what kind of cancer or all the treatment he’s had. He will know more about then when he’s old enough to understand…

I wish having hair didn’t mean healthy and been bald didn’t mean sick. I wish bald was a sign of an strong fighter winning a battle. I guess all I can hope is when children ask their parents questions, the parents respond with uplifting comments of hope..

I know people are going to talk and stare but please don’t. Smile! That child has a battle they shouldn’t have to face. Smile and know they are brave! They look beautiful without hair.

I used to always put a hat on Riley whenever we went out but he always took it off. Which I don’t blame him to be honest he was proud of his bald head! He showed it off! I will always be so proud of him.

When Riley was diagnosed with cancer Alice (his auntie) more ales decided straight away that she wanted to have her head shaved and donate her hair to Little Princess trust LittlePrincessTrust

Which she raised over £2000 for for candleligjters the charity that supported us and Riley throughout his treatments Candlelighters

Want to follow our journey even more? Follow us on Facebook. www.facebook.com/rileysjourneyxo

Daily Life

Giving Cancer The Finger.

 

This year we are giving cancer the middle finger!

2018 isn’t going to be about cancer or neuroblastoma. its not going to get the attention it doesn’t deserve.

2018 is time for Riley to learn lots of new things and to have more adventures. Everyday he wakes up with a smile on his face showing cancer it didn’t win this battle and its not about to destroy his day.

Riley knows he had cancer but he doesn’t let that beat him so why should we let cancer be so focused on in 2018? We shouldn’t! 

We know the side effects from his treatment will be there with us daily regarding his physical development & his ears but that is something we are dealing with now, sooner rather then later in the year. We’ve just got an appointment sorted out for ENT next week!

We’re going to make lots more memories. Try lots of new things. Adventure further and laugh so much more then we have done before.

2018 also marks 2 full years in remission which is obviously amazing!

We’ve focused our lives on cancer so much these past 3 years, with Riley having all his different treatments, tests & scans in between them & then waiting for the results. It gives you the worst anxiety you ever have to experience. Don’t get me wrong the anxiety is probably always going to be around tests & scans because you will never know what they’re going to show.

But! 2018 is going to be a good year. No more negativity, its time to laugh, smile and enjoy life. Life without cancer for a change.

So here’s to 2018. The year we give cancer the middle finger!

soph&riley xx