Cancer Life

How I Wish People Saw Riley’s Bald Head.

One thing that used to upset me the most when Riley was going through his treatment was the way people used to look and stare at him when he was bald.

Tell you, it used to make my blood boil. It’s not even like they used to take a look and look again it was a full on stare. All eyes on him. I could always feel myself boiling inside getting ready for the next person to stare at him for me to let go all my anger.

Of course, people think it’s sad that a child has cancer. It’s not sad, that child is fighting cancer. To them it’s the hardest battle they have to face. The day you walk past a child with no hair is another day that, that child is winning!

I finally decided to shave Riley’s hair off in December because his hair was starting to fall out, just two chemotherapy sessions into his treatment plan. I woke up one morning at the hospital and found little blonde hairs on his pillow. That’s when straight away I hoped the chemotherapy was working.

Thankfully Riley didn’t loose his eyelashes, he has the most beautiful long lashes…

After 7 sessions of chemotherapy and whilst waiting for surgery Riley’s hair started to grow back. It was very very very blonde. Was only like this until it fell out again during high dose chemotherapy. His surgery was in March and his high dose chemotherapy started in April. One month apart.

After 21months of treatment Riley now has light brown hair.

For a 4 year old Riley has never asked questions when we have seen other bald children in clinic or on the ward. When I ask Riley why didn’t he have any hair he just says because he was poorly but he’s all better now.

Riley knows he was poorly and he knows he had cancer but he doesn’t know what kind of cancer or all the treatment he’s had. He will know more about then when he’s old enough to understand…

I wish having hair didn’t mean healthy and been bald didn’t mean sick. I wish bald was a sign of an strong fighter winning a battle. I guess all I can hope is when children ask their parents questions, the parents respond with uplifting comments of hope..

I know people are going to talk and stare but please don’t. Smile! That child has a battle they shouldn’t have to face. Smile and know they are brave! They look beautiful without hair.

I used to always put a hat on Riley whenever we went out but he always took it off. Which I don’t blame him to be honest he was proud of his bald head! He showed it off! I will always be so proud of him.

When Riley was diagnosed with cancer Alice (his auntie) more ales decided straight away that she wanted to have her head shaved and donate her hair to Little Princess trust LittlePrincessTrust

Which she raised over £2000 for for candleligjters the charity that supported us and Riley throughout his treatments Candlelighters

Want to follow our journey even more? Follow us on Facebook. www.facebook.com/rileysjourneyxo

Daily Life

So, how was my January?

How was my January? Ha.

Well the new year was fun. Or should I say the 1st of January…

On the second of January Me and Riley extended our family by four feet and welcomed a lovely shih tzu puppy into our family, Coco. But On the same day I ended up bumping my new car that I’d only had over 2 weeks on our gate. Great start to the year! Urgh! Baring in mind my insurance wanted £300…

dint on car...

Alice turned 21! So no longer a teenager, My little sister is definitely growing up! Still miserable. ⬇️

Coco had all her puppy injections so she’s been able to go for her first walk which Riley was soo excited about! She’s a wonderful little walker who likes to be fussed over which is funny. She will sit down and refuse to move. She even had a little visit to PetsAtHome at the end of the month..⬇️

Tbqh I’m actually sat here trying to think of everything that I’ve done in January and it’s not a lot. Like to be January is the month everybody struggles with money and wanting to loose the weight they’ve put on over Christmas. I’ve spent most of January trying to eat all the chocolate I got for Christmas!

I had my hair re-dyed. You know everytime I go to the hairdressers I come out feeling like a brand new women. New hair new attitude!⬇️


And we managed to see the ENT (ears nose and throat) this week & I signed a consent form & Riley’s now on a waiting list to finally have grommets put into his ears to stop all these nasty ear infections he keeps getting. I know it might be strange for you to read but I honestly can’t wait. He gets so much pain from his ears, he gets infection after infection every few weeks now. He doesn’t sleep he’s in that much pain so the grommets will definitely help him and stop the infections!

Oh and I’ve managed to get my car booked in to be fixed!

Here to a wonderful February! 🤞🏻

Uncategorized

Liebster Award.

I’m feeling really proud of my blog atm.

All the wonderful likes and comments in getting on my latest post https://justsophandriley.blog/2018/01/23/giving-cancer-the-finger/

salgallaher nominationed me for a Liebster Award and I’m so pleased as I only started this blog a few weeks ago. Thank you so much Sal, it really does mean alot. So pleased I’ve started off so well and hope it continues like this…

So what exactly is this award? Tbh I had no idea, I had to google it! I think it’s a great idea to promote each other and thank one another for sharing their blogs. So the award is when bloggers nominate other bloggers for showing respect to their works and their dedication. It’s an appreciation and recognition for all the fellow bloggers out there in the blogosphere!

Rules for accepting it?

Write about it on your blog and thank the person who nominated you.

Display the award on your blog.

Nominate 5 – 10 blogs which you feel deserve the award.

Let the nominees know that you nominated them.

Don’t forget to create 10 questions for them to answer. Notify your nominees and provide a link to your post so that they’ll know what to do. Once you’re done, come back here and comment with the link to your post so I can check out your answers.

Below are my 10 questions from Sal and my answers.

1. If you could have a superpower what would it be and why? Invisibility – would love to listen in on peoples conversations and know they’re little secrets.

2. What is your favourite movie? I have always loved anything with Adam Sandler in it but tbh my favourite film is The Hand That Rocks The Cradle. The story is so interesting and when I watched it for the first time I had never seen anything like it before. So it’s always one that has stuck with me. Something different.

3. When and why did you start blogging? I actually created my blog back in 2016 and shared Riley’s cancer treatment on it but deleted it and started this one again at the beginning of the year. I wanted to raise awareness for childhood cancer and the struggles the treatment brings afterwards and so far I think I’ve done a good job. We are rebuilding our lives.

4. Paperbook or Kindle? Paperbook!

5. Do you now live in the country you were born in? Yes I still do. I’ve always wanted to move away from Leeds but I don’t think I ever will. Leeds is where I was born, where I live. The only other place I would probably move too would be Skegness or somewhere really quiet away from people.

6. If money was no object what would you do this weekend? Take riley to legoland and buy all the Lego he wanted! He’s been wanting to go for a few years now so that would definitely be the thing we would do.

7. Who do you respect and look up to? Even though I might not always show it I respect my mum. She’s always tried her best for me and my sister. Even when she’s tired she’s still doing things for other people making sure we have what we need. I also look up to every single person that helped Riley during his cancer treatment they deserve so much respect!

8. Do you listen to music when youwrite, if yes what is your preference? Sometimes I do, but sometimes I just have the telly on for background noise. If I do I love listening too maroon5.

9. What really makes your heart sing? Riley every single day. He makes me so proud. The smile he puts on his face after everything he’s been through it makes me so proud!! He doesn’t let anything defeat him! He brings me so much happiness and joy.

10. What is your main goal for this year? Forget cancer and enjoy our lives. Make more memories. Smile and laugh more!

Now I would like to nominate the following awesome people…

My 10 questions to the Nominees are:

1. What is your life goal?
2. Where do you want to be in 5 years time?
3. Favorite food?
4. Programme you’ve seen every single episode of?
5. What gives you inspiration?
6. 3 things you hate?
7. How do you spend your Sunday’s?
8. What made you create your blog?
9. What brings you the most happiness?
10. What is your main goal for this year?

Once again thank you Sal. Can’t wait to see people’s posts!

Daily Life

Giving Cancer The Finger.

 

This year we are giving cancer the middle finger!

2018 isn’t going to be about cancer or neuroblastoma. its not going to get the attention it doesn’t deserve.

2018 is time for Riley to learn lots of new things and to have more adventures. Everyday he wakes up with a smile on his face showing cancer it didn’t win this battle and its not about to destroy his day.

Riley knows he had cancer but he doesn’t let that beat him so why should we let cancer be so focused on in 2018? We shouldn’t! 

We know the side effects from his treatment will be there with us daily regarding his physical development & his ears but that is something we are dealing with now, sooner rather then later in the year. We’ve just got an appointment sorted out for ENT next week!

We’re going to make lots more memories. Try lots of new things. Adventure further and laugh so much more then we have done before.

2018 also marks 2 full years in remission which is obviously amazing!

We’ve focused our lives on cancer so much these past 3 years, with Riley having all his different treatments, tests & scans in between them & then waiting for the results. It gives you the worst anxiety you ever have to experience. Don’t get me wrong the anxiety is probably always going to be around tests & scans because you will never know what they’re going to show.

But! 2018 is going to be a good year. No more negativity, its time to laugh, smile and enjoy life. Life without cancer for a change.

So here’s to 2018. The year we give cancer the middle finger!

soph&riley xx