Cancer Life

Giving Cancer The Finger. (part2)

In January I wrote a blog Giving Cancer The Finger

Since January a lot has happened for Riley. In May he had grommets fitted because he was constantly getting extremely bad ear infections due to the treatment he had for his cancer. Luckily Riley hasn’t had any ear infections since. No pain, nothing which is absolutely amazing!!!

Two weeks after having his grommets fitted he had his dental surgery which sadly saw Riley loose 10 teeth!!! I cherished his smile so much before he went down to surgery as I know the worst scenario would be for Riley to come out of surgery and have no teeth, the surgeon did warn me! This aswell was due to the aggressive chemotherapy he had to treat his cancer. One thing that upset though was when the surgeon said that Riley needed so many teeth removing was because hes been drinking alot of squash. Even though we always buy the no added sugar… Riley was defiantly happy the Tooth Fairy came to visit him and left him some money!

Before Going Down To Surgery.

Recovering Back On The Ward.
New Smile.
The Tooth Fairy Has Been!!!

Riley having his grommets fitted and his teeth out was the one thing that was stopping us from forgetting about cancer.

Forgetting cancer is going to be hard, but by forgetting it it won’t be controlling our lives anymore. It won’t be stopping us from doing things we haven’t done yet! It won’t stop Riley from doing anything he’s already missed out on! So let’s close the door on that part of our lives slam shut and finally wave goodbye.

Now hes had these final two surgeries Riley can FINALLY FORGET CANCER and give it the middle finger! 🖕🏻

riley, everyday im so proud of you. you are your very own superhero and an inspiration to so many children fighting this battle too. i love you baby boy. mummy x

Cancer Life

Scan Results 🎗

We have the most wonderful news to share with you all!

Riley’s recent scan results were all

C L E A R!!! 💛💛

This year we are trying so hard to put cancer behind us but when it comes to his 6monthly scans it is hard to not think back to when he was diagnosed and he was having all these different tests and scans done.

It’s always the best sound to hear when his consultant tells me his scans are all clear!! The anxiety stops for another 6 months.

Riley is 5 years old now, he was only 21months when he was diagnosed. He is asking more questions about when he was having treatment for his cancer. So far he’s asked… “has my cancer gone yet” “why didn’t I have any hair” I just try and explain things to him the best that I can with him only been 5 it’s still hard for him to be able to understand things probably. He knows why he didn’t have any hair. His knows why he had a wiggly line and a tube in his nose. He understands more now when he has to go for his MRI scans. We have pictures all over the house of Riley with no hair so it’s understandable he’s going to ask questions. He knows he is a special little boy who has the best superpowers! We got a book from his consultant about Lucy having a tumour so hopefully the more we can read of that he will be able to understand a little bit more…

Riley has now been in remission for 2years! 730days! He’s had 4 clear scans in a row now! Which is bloody amazing!!!

So so so proud of my amazing strong little boy. I will always be every so grateful to the oncology team at the hospital for helping save my little boys life! We had some absolutely horrible times when Riley had his treatment but now it’s all about having fun, counting our blessings and making the most wonderful memories!

I love you Riley.

Cancer Life

2Years in remission!! 🎗

Today is a very special day for my boy…

2 years he’s now been in remission. no evidence of disease… cancer free!!!!

my boy is smashing it everyday!

Could not be any more proud of him.

We still have to battle with the side effects most days but Riley does everything was a smile on his face. Everyday is a day worth celebrating for Riley. He had the hardest battle of his life to face at just 21months the old when he was diagnosed but he’s now 5 years old and doing absolutely amazing! 💕

#cancerversary

Cancer Life

How I Wish People Saw Riley’s Bald Head.

One thing that used to upset me the most when Riley was going through his treatment was the way people used to look and stare at him when he was bald.

Tell you, it used to make my blood boil. It’s not even like they used to take a look and look again it was a full on stare. All eyes on him. I could always feel myself boiling inside getting ready for the next person to stare at him for me to let go all my anger.

Of course, people think it’s sad that a child has cancer. It’s not sad, that child is fighting cancer. To them it’s the hardest battle they have to face. The day you walk past a child with no hair is another day that, that child is winning!

I finally decided to shave Riley’s hair off in December because his hair was starting to fall out, just two chemotherapy sessions into his treatment plan. I woke up one morning at the hospital and found little blonde hairs on his pillow. That’s when straight away I hoped the chemotherapy was working.

Thankfully Riley didn’t loose his eyelashes, he has the most beautiful long lashes…

After 7 sessions of chemotherapy and whilst waiting for surgery Riley’s hair started to grow back. It was very very very blonde. Was only like this until it fell out again during high dose chemotherapy. His surgery was in March and his high dose chemotherapy started in April. One month apart.

After 21months of treatment Riley now has light brown hair.

For a 4 year old Riley has never asked questions when we have seen other bald children in clinic or on the ward. When I ask Riley why didn’t he have any hair he just says because he was poorly but he’s all better now.

Riley knows he was poorly and he knows he had cancer but he doesn’t know what kind of cancer or all the treatment he’s had. He will know more about then when he’s old enough to understand…

I wish having hair didn’t mean healthy and been bald didn’t mean sick. I wish bald was a sign of an strong fighter winning a battle. I guess all I can hope is when children ask their parents questions, the parents respond with uplifting comments of hope..

I know people are going to talk and stare but please don’t. Smile! That child has a battle they shouldn’t have to face. Smile and know they are brave! They look beautiful without hair.

I used to always put a hat on Riley whenever we went out but he always took it off. Which I don’t blame him to be honest he was proud of his bald head! He showed it off! I will always be so proud of him.

When Riley was diagnosed with cancer Alice (his auntie) more ales decided straight away that she wanted to have her head shaved and donate her hair to Little Princess trust LittlePrincessTrust

Which she raised over £2000 for for candleligjters the charity that supported us and Riley throughout his treatments Candlelighters

Want to follow our journey even more? Follow us on Facebook. www.facebook.com/rileysjourneyxo

Cancer Life

🎗 World Cancer Day 🎗

638days, 21months. This is how long Riley thought Cancer for…

Today is world cancer day. I was told the 4 words no parent ever wants to hear. Every parents worst nightmare.

28|02|2014 was the hardest day of our life. The day I was told Riley had cancer, the day Neuroblastoma walked into our lives and every parents worst nightmare had begun…

  • 7 chemotherapy sessions.
  • 5 hour surgery to remission be the tumour in his adrenal gland.
  • Stem cell harvest.
  • High dose chemotherapy.
  • Stem cell transplant.
  • Radiotherapy.
  • Immunotherapy.
  • Antibody treatment.

Every part of Riley’s treatment was difficult for him but he did it with a smile on his face.

In March 2016 we was told amazing news, Riley’s was in remission. No sign of cancer anywhere. Riley had well and truly beaten cancer.

Riley 1 – Neuroblastoma 0!

Today I am thanking those people who saved my sons life. Im remembering all those we lost along the way, those still fighting and those who survive. No matter how well Riley looks today, I’ll never forget him laid on his hospital bed with no energy…

#WorldCancerDay 🎗💖