Riley had a Stem Cell Transplant🎗
This was the most difficult part of his treatment plan. Really difficult.
We spent a long 9 weeks in hospital.
Riley had his own Stem Cells Transplanted after 2 weeks of High Dosed Chemotherapy.
You can see from these pictures Riley was in pain and uncomfortable. He did get extremely poorly and was rushed to intensive care twice with septic shock and a number of other infections. He was needing a low percent of oxygen. He had really bad mucositis where he couldn’t eat or drink at all and was having to have water by a sponge onto his lips.
With spending nine weeks in hospital laying in a hospital bed he actually found it difficult to get up and walk again, But little by little he managed to get his muscles working again.
These 9 weeks were the hardest to deal with physically and emotionally. Been in the same room for 9 weeks. We were literally in isolation. It was really hard.
Riley now and still suffers with:
🎗 bowel problems – diarrhoea.
🎗 taste changes – only eats certain foods as his taste buds haven’t fully recovered from treatment.
🎗 hearing loss – really sensitive hearing to loud noises. can’t hear some loud noises at all.
🎗 dental problems – had teeth removed, adult teeth now growing causing him pain.
🎗 can’t control his emotions.
🎗 pain – walking long distances, when tired hurts more.
Some people think once the treatment stopped and your in remission everything stops. It’s wrong. You still have the after effects to deal with. The side effects to deal with. The trauma to deal with. Sometimes it’s after everything has finished that you need people most to understand.
Neuroblastoma most commonly occurs in 1 of the adrenal glands situated above the kidneys, or in the nerve tissue that runs alongside the spinal cord in the neck, chest, tummy or pelvis.
It can spread to other organs, such as the bone marrow, bone, lymph nodes, liver and skin.
It affects around 100 children each year in the UK and is most common in children under the age of 5. 👦🏼👦🏼👦🏼👦🏼👦🏼
The cause is unknown.
Symptoms of neuroblastoma:
🎗a swollen, painful tummy.
🎗 blueish lumps in the skin.
🎗bruising, particularly around the eyes.
🎗weakness in the legs, an unsteady walk.
🎗constipation and difficulty peeing.
🎗loss of energy.
🎗loss of appetite and weight loss.
🎗eye and muscle movements.