Riley had a Stem Cell Transplant🎗
This was the most difficult part of his treatment plan. Really difficult.
We spent a long 9 weeks in hospital.
Riley had his own Stem Cells Transplanted after 2 weeks of High Dosed Chemotherapy.
You can see from these pictures Riley was in pain and uncomfortable. He did get extremely poorly and was rushed to intensive care twice with septic shock and a number of other infections. He was needing a low percent of oxygen. He had really bad mucositis where he couldn’t eat or drink at all and was having to have water by a sponge onto his lips.
With spending nine weeks in hospital laying in a hospital bed he actually found it difficult to get up and walk again, But little by little he managed to get his muscles working again.
These 9 weeks were the hardest to deal with physically and emotionally. Been in the same room for 9 weeks. We were literally in isolation. It was really hard.
Riley now and still suffers with:
🎗 bowel problems – diarrhoea.
🎗 taste changes – only eats certain foods as his taste buds haven’t fully recovered from treatment.
🎗 hearing loss – really sensitive hearing to loud noises. can’t hear some loud noises at all.
🎗 dental problems – had teeth removed, adult teeth now growing causing him pain.
🎗 can’t control his emotions.
🎗 pain – walking long distances, when tired hurts more.
Some people think once the treatment stopped and your in remission everything stops. It’s wrong. You still have the after effects to deal with. The side effects to deal with. The trauma to deal with. Sometimes it’s after everything has finished that you need people most to understand.
Last Tuesday, 14th May I got the keys to my house. A lot has been done in the past week and lots more money has been spent!
Carpets ordered and paid for which are getting fitted tomorrow!! So exciting!
Rileys new bed has been delivered just needs to be built once the carpets are down.
Got a beautiful corner sofa ordered which will be delivered in 5 weeks hopefully!
Since my side gate was kicked in by stupid kids having nothing better to do my mum and dad bought and fitted my new one today! I had somebody dump a load of rubbish in my back garden on Friday night which pissed me off!!! So had to deal with that which was an absolute joke.
Me and my mum spent one afternoon just cleaning the outside of the front and back doors.
I spent one morning cleaning all the windows which were black! Honestly looked like they had never been opened before. Was shocking tbh. And then cleaned the inside of the front and back doors.
The decorator has been there everyday since I got the keys turning what was a blank white canvas into a beautiful colourful home!
I ordered and paid for blinds for the full house which were fitted on Monday! Honestly the blinds made the house look so much more like a house if that makes sense.
Today I’ve cleared the horrible gravel from my pathway. The gravel leaded right up to the front door. I didn’t want Riley to fall on it when it rained either so thought it was best to have a nice little path we could walk on.
The back garden needs a proper gut clean aswell now. The window frames need cleaning!
When the time comes where I’ve got abit more money behind me because atm I’m bloody skint! 😭 I’ll get my bed but right now that’s not something I need as I am taking the bed I have at my mums with me.
Most importantly everything is coming together now nicely!
Okay so last week I lost a lovely 2 pounds!!! Yeeey I was so happy and definitely planned for another loss this week too but, how I failed this week…
So I bought more slimming world meals on the Saturday morning, ready for my week ahead I knew what I was having. But, Riley started to feel unwell in the afternoon. He was sick, then the diarrhoea started. After he was sick he felt better but he was sleeping a lot that afternoon so I still decided I was going to go out for a meal and cinema like I’d planned.
I went to go to Glass! Wouldn’t waste your time btw.
As soon as I got home I went to check in Riley, as I always do. Riley had had an accident in his sleep, the smell was terrible! After changing his bed and giving him a wash. I was awake most the night, humming and aaarrring weather or not to ring 111 and get some advice. I decided to sleep on it and ring them in the morning…
The Sunday morning he wasn’t much better. He wasn’t eating only drinking, the sickness and diarrhoea was still there and he looked so pale. I decided to ring 111 and get advice. They told me to get to the hospital A&E within the hour. Obviously I was emotionally eating! My sister bless her brought me food to keep me going but because I was tired I just wanted to say rubbish so I did.
Turned out Riley had a terrible bug. Didn’t send him to school Monday and Tuesday. So I carried on eating rubbish followed by more rubbish and more rubbish! Sugar drinks the lot. Anything to keep my energy up because I was just so tired!
Wednesday I didn’t feel that great I was light headed so more sugar drinks and chocolate was my only answer.
Then Thursday I was blessed with my star week. So as you can imagine I’ve had a rubbish week. Urgh.
Sooooooooo… this week the scales said… I had put 1.5lbs ON!
Which I was expecting.
This week I’m going to try my best to get that off and a little more! I’m going to plan ahead. Plan my meals. Plan my snacks. Plan everything I can! I’m going to really push myself.